The panel titled 'Racing Against Time: Europe’s Rare Kidney Disease Challenge' discussed the importance of early diagnosis in rare kidney diseases, highlighting the socio-economic impacts of delayed diagnosis. Lydia Abad-Franch emphasized the need for structural changes in health systems, while Daniel Gallego shared his personal experience of being diagnosed late. The discussion included the potential of urine testing and integrated screening approaches to improve early detection and treatment access. Policymakers are urged to prioritize these initiatives to enhance patient outcomes and reduce future healthcare costs.